Got an update from DK's mom today. It has been a bit over 5 years since the accident on American Lake.

MARCH 9TH 2014 1:25 pm

Posted 2 days ago


Spring is near! We have rainy and sunny days sometimes separated only by a few blocks, everyone is getting over the upper respiratory infection going around and March 1st has passed. DK is 5 years past his accident. He too got that nasty lung infection, but was able to stay out of the hospital. He will be on the Tobramycin inhalant for 28 days; off for 28 then back on again for 28 days. Lucky, lucky to have insurance that will pay the $3,700.00 for each round. It is the only way to clear his lungs of the pseudomonas aeruginosa infection. He was very sick; he had to go to the ER, but we only stayed 7 hours. He had to spend the next couple of weeks on oxygen and home from school.

We knew he was feeling much better when he started being ornery. He refused to keep his Trach mask on for his treatment and I had to tie his Left hand to the bed rail with a bandanna. He laughed; thinking it was funny and a game. Another time he was making mad faces at me and many hand gestures. I was running through the 20 Questions, trying to guess what he wanted. When he folded his left ear over a light went on. I asked him, “Do you want me to read your book to you?” Bingo, his eyes lit up! I am reading him The Book of Time; it is about a boy who time travels. It is his favorite genre. Leif, his night CNA just finishing reading DK The Clan of the Bear Cave. I am trying to get the day CNA to read him song lyrics or poetry, as she is not interested in reading books.

School is going a little better. We just learned Friday that the Para teacher Barb he likes finally got the word she was hired. A screwy system is used for the teachers’ contracts. They wait a long time to find out if they have the job that they have been working anyway for months. I will ask her if she is willing to sit down with me to discuss what will work best for DK in the rest of the year. He has gained so much more dexterity in his Left hand and fingers in this last year. This morning he kept closing the DVD player lid each time I opened it to put a movie in the player. He loves using his new movements to interfere with whatever someone is trying to do. I made a deal with him this morning; if he left his Trach, alone I would get the DVD player out for him to watch a movie during the treatment. I am really hoping I can get him interested in a touch screen program with big letters to work on communication.

Sincerely Shamrocked, Gail
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"Give me the anger, fish! Give me the anger!"

They call me POODLE SMOLT!

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